Warning messageThis content is filtered. APPPAH membership is required for full access to journal articles.
This article reports on qualitative research into the experience of couples who chose to continue their pregnancies after receiving a lethal fetal diagnosis, and to embrace the parenting of their baby in the shortened time they have.
Abstract: This article reports on qualitative research into the experience of couples who chose to continue their pregnancies after receiving a lethal fetal diagnosis, and to embrace the parenting of their baby in the shortened time they have. This analysis of interview data is part of a larger research project describing parents’ experiences of continuing pregnancy with a known lethal fetal diagnosis (LFD).prenatal parenting, lethal fetal diagnosis, LFD
Abramsky, L., & Chapple, J. (Eds.) (2003). Prenatal diagnosis: the human development (2nd ed.)
Cheltenham, UK; Nelson Thornes Ltd.
Ammaniti, M., Trentini, C. Menozzi, F., & Tambelli, R. (2014). Transition to parenthood:
Studies of intersubjectivity in mothers and fathers. In R.N. Emde & M. Leuzinger-
Bohleber (Eds.), Early parenting and prevention of disorder: Psychoanalytic research at
interdisciplinary frontiers (pp. 129-164). London, UK: Karnac Books.
Belsky, J. (1984). The determinants of parenting: A process model. Child Development, 55(1), 83-96. doi:10.2307/1129836
Bouchard, G. (2011). The role of psychosocial variables in prenatal attachment: An examination of moderational effects. Journal of Reproductive & Infant Psychology, 29(3), 197-207. doi:10.1080/02646838.2011.592975
Brandon, A.R., Pitts, S., Denton, W.H., Stringer, C. A., & Evans, H.M. (2009). A history of the theory of prenatal attachment. Journal of Prenatal & Perinatal Psychology and Health, 23(4), 201-222.
Chitty, L. S., Barnes, C. A., & Berry, C. (1996). Continuing with pregnancy after a diagnosis of lethal abnormality: Experience of five couples and recommendations for management. British Medical Journal, 313, 478-480.
Condon, J.T. (1985). The parental-foetal relationship: A comparison of male and female expectant parents. Journal of Psychosomatic Obstetrics & Gynecology, 4(4), 271-284.
Conner, G.K., & Denson, V. (1990). Expectant fathers’ response to pregnancy: Review of literature and implication for research in high-risk pregnancy. Journal of Perinatal and Neonatal Nursing, 4(2), 33-42.
Côté-Arsenault, D., Brody, D., & Dombeck,M-T. (2009). Pregnancy as a rite of passage: Liminality, rituals & communitas. Journal of Prenatal & Perinatal Psychology and Health, 24(2), 69-87.
Côté-Arsenault, D. & Denney-Koelsch, E.(2011). “My baby is a person”: parents’ experiences with life-threatening fetal diagnosis. Journal of Palliative Medicine, 14(12), 1302-1308. doi: 10.1089/jpm.2011.0165.
Cranley, M.S. (1979). The impact of perceived stress and social support on maternal-fetal attachment the third trimester. (unpublished doctoral dissertation). University of Wisconsin; Madison, WI
D’Almeida, M., Hume, R.F., Lathrop, A., Njoku, A., & Calhoun, B.C. (2006). Perinatal hospice: Family-centered care of the fetus with a lethal condition. Journal of American Physicians and Surgeons, 11(2), 52-55.
Deave, T., Johnson, D., & Ingram, J. (2008). Transition to parenthood: the needs of parents in pregnancy and early parenthood. BMC Pregnancy & Childbirth, 8(30), 1-11. doi: 10.1186/1471-2393-8-30
Duncan, L.G., Coatsworth, J.D., & Greenberg, M.T. (2009). A model of mindful parenting: Implications for parent-child relationships and prevention research. Clinical Child and Family Psychological Review, 12, 255-270. doi: 10.1007/s10567-009-0046-3
Feldhusen, A. E. (2000). The history of midwifery and childbirth in America: A time line. Retrieved December 10, 2014, from Midwifery Today website: http://www.midwiferytoday.com/articles/timeline.asp
Hawkins, A., Stenzel, A., Taylore, J., Chock, V., & Hudgins, L. (2013). Variables influencing pregnancy termination following prenatal diagnosis of fetal chromosome abnormalities. Journal of Genetic Counseling, 22, 238–248 doi: 10.1007/s10897-012-9539-1
Kuebelbeck, A. (2003). Waiting with Gabriel: A story of cherishing a baby's brief life. Chicago, IL: Loyola Press.
Kuebelbeck, A., & Davis, D. L. (2011). A gift of time: Continuing your pregnancy when your baby's life is expected to be brief. Baltimore, MD: The Johns Hopkins University Press.
Lathrop, A., & VandeVusse, L. (2011). Affirming motherhood: Validation and invalidation in women’s perinatal hospice narratives. Birth, 38(3), 256-265.
Lincoln, Y.S., & Guba, E.G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
Lopez, K.A., & Willis, D.G. (2004). Descriptive versus interpretive phenomenology: Their contributions to nursing knowledge. Qualitative Health Research, 14(5), 726-735. doi: 10.1049732304263638
Merleau-Ponty, M. (1945). Phenomenology of Perception (Translated by C. Smith (1962). New York: Humanities Press.
Miles, M.B., Huberman, A.M., & Saldaña, J. (2014). Qualitative data analysis: A methods sourcebook. (3rd ed.). Los Angeles, CA: Sage.
O'Leary, J., & Thorwick, C. (2008). Attachment to the unborn child and parental mental representations of pregnancy following perinatal loss. Attachment: New directions in psychotherapy and relational psychoanalysis, 2(3), 292-320.
O'Leary, J., & Warland, J. (2012). Intentional parenting of children born after a perinatal loss. Journal of Loss & Trauma, 17(2), 137-157. doi:10.1080/15325024.2011.59529
O'Leary, J., Warland, J., & Parker, L. (2011). Prenatal parenthood. The Journal of Perinatal Education, 20(4), 218-220. doi: 10.1891/1058-1243.20.4.21
Pomerantz, E. M., & Thompson, R. A. (2008). Parents’ role in children’s personality development: The psychological resource principle. In O. P.John, R. W. Robins, & L. A. Pervin (Eds.), Handbook of personality psychology: Theory and research (3rd ed., pp. 351–374). New York, NY: Guilford Press.
Rubin, R. (1975). Maternal tasks in pregnancy. Maternal Child Nursing Journal. 4, 143-153.
Rubin, R. (1984). Maternal Identity and the Maternal Experience. New York, NY: Springer.
Sandelowski, M., & Barroso, J. (2005). The travesty of choosing after positive prenatal diagnosis. Journal of Obstetric, Gynecologic & Neonatal Nursing, 34, 307-318.
Skinner, E., Johnson, S., & Snyder, T. (2005). Six dimensions of parenting: A motivational model. Parenting: Science and Practice, 5(2), 175–235. doi:10.1207/s15327922par0502_3
Valentine, D.P. (1982). The experience of pregnancy: A developmental process. Family Relations, 31(2). 243-248.
Virasiri, S., Yunibhand, J.,& Chaiyawat, W. (2011). Parenting: What are the critical attributes? The Journal of the Medical Association of Thailand, 94(9), 1109-1116.
Vreeswijk, C.M.J.M., Maas, A.J.B.M., Rijk, C.H.A.M., & van Bakel, H.J.A. (2014). Father’s experiences during pregnancy: Paternal prenatal attachment and representation of the fetus. Psychology of Men & Masculinity, 15(2), 129-147. doi: 10.1037/a003070